Sean
Mosaic Trisomy 16
Here [above right] is a picture taken of Sean at 7 months (he weighs almost 11 pounds).
I just want to reiterate that Sean's heart problems are really his only problem (the hernia was just a preemie thing). The other stuff is so minor and I only mention it so we can keep an accurate track of everything. Other than being small, Sean looks completely normal. In fact, almost every doctor has commented on what a handsome boy he is.
The other thing that strikes me is just how many people on the web site talk about what a happy, outgoing child they have. That really counts for a lot.
My big advice to all expecting parents is to hope for the best but be prepared and take care of yourselves. You might have a child in the NICU for a while. Know the hospitals in your area with a level III NICU and, especially if you have other children, have some help available when the baby is born. It's a stressful time, but you'll have great people taking care of your kids - I got lots of tips and advice from the nurses. And, like Karen said, a lot of it fades away after a while (I said I'd never have another kid after my first childbirth experience b/c it was so painful).