Welcome to the DOC16 Foundation!
We are committed to providing information and support to families dealing with the diagnosis of a chromosome 16 disorder. While much more research needs to be done to fully comprehend these rare disorders, we hope that we can help parents better understand these diagnoses and their potential implications.
Here on our website, in addition to finding information about specific chromosome 16 disorders, you can read the personal stories of our children affected by chromosome 16 abnormalities and get connected to other parents who have experienced the same diagnosis. Please contact us for more information.
February 29 - World Rare Disease Day
DOC16 is joining the Global Genes Project next week to celebrate World Rare Disease Day! We'll be wearing our "Jeans for Genes" in support of the 350 million people dealing with rare disease worldwide. To join in, you can simply wear your jeans or a denim ribbon on Wednesday or you can go a step further. You can "like" the Global Genes Project on Facebook and invite your friends and family to do the same. You can grab a logo button and post it on your own Facebook page, Twitter account, or personal web site and let everyone know that you support all who are affected by rare disease every day, including the children of the DOC16 Foundation. Please join us in letting others know that rare diseases aren't so rare after all!
A Note from the President
As the newly appointed President of DOC16, I’m really looking forward to helping further the growth and impact of this amazing organization. Through the work of Founder Karen Lange and many others, so many families have been positively affected and the Foundation continues to grow. I know that by working together, we can continue to fulfill the DOC16 mission. Please email me at doc16foundation@yahoo.com if you have questions, ideas or want to get involved.
Samantha Hubbell