16p trisomy and 18p monosomy (unbalanced translocation)
Hunter was born October 27, 1998. He had a lot of difficulties when he was born which included an unstable airway. On November 23rd, Hunter had a tracheotomy, fundoplication, gastrostomy tube, and a double hernia repair. We have recently brought Hunter home from the hospital and we are getting used to his schedule. Doctors have told us very little but that is only because they do not know themselves. We've had a lot of negative comments which include "he probably will not survive."
Hunter was born to us for a reason. He's very strong and has a will to live. We have a long road ahead of us. We live day by day, trying to find out what we can and hope we can handle whatever it is. We pray and hope we have the strength to not give up hope.
UPDATE JUNE 2001