Partial Trisomy 16
Alex was born on Feb. 12, 1992. We were told that he would not live past nine months, that he would have to be tube fed, and that he would not be aware of his surroundings. We were also told that he was blind.
Alex stayed in the hospital for almost 3 months. We took him to Atlanta for a cornea transplant which his doctors felt was a waste of time and money.
Alex is now 6 years old. He attends school Mon-Fri; he is in kindergarten. He has OT, PT, and speech therapy while at school, he is non-verbal but he lets us know what he wants and when he wants. He responds to his surroundings. He laughs, hugs, fusses, and cries to get his point across.
Alex has an older brother (17) and sister (13) who just adore him. They don't let him get away with too much. He still has to do his exercises with them.
We as his parents have learned to just offer Alex the best that we can, the best that is available to us, and to wait to see what God has in store for our son.