"Never doubt that a small group of thoughtful,
committed citizens can change the world;
indeed it's the only thing that ever has."
Margaret Mead

Our Mission

The Disorders of Chromosome 16 Foundation (DOC16) is dedicated both to promoting research and providing information on chromosome 16 abnormalities.

The Foundation provides information, education, and support to families of children living with a chromosome 16 disorder and to expectant parents confronting a similar diagnosis. The Foundation also serves as a resource aiding family, friends, caregivers, and medical professionals in their supportive roles.

Reaching Out

DOC16 is the only organization specifically for Chromosome 16 related disorders. We provide a wide range of educational and support services including:

• Web site

• Telephone support

• Database of registered families

• Information on current research

• Quarterly newsletter

• Referrals to other affected families

• Information for medical professionals
  

Board of Directors

President
Rosalyn Gregg

Treasurer and Secretary
Marc Rosenstock

Members
Gina Haney
Wayne Lange
Gayle Timlin, M.S.W.

Medical Advisors

Peter A. Benn, Ph.D.
Director, Human Genetics Laboratories
Professor, Department of Pediatrics
University of Connecticut Health Center
Connecticut

Beth A. Pletcher, M.D., FAAP, FACMG
Associate Professor of Pediatrics
UMDNJ - New Jersey Medical School
New Jersey

Beth Leeth, M.S.
Genetic Counselor
Evanston Northwestern Healthcare
Evanston, Illinois

Sara Star Nussbaum, M.D.
Glencoe, Illinois

Wendy P. Robinson, Ph.D.
Professor of Medical Genetics
B.C. Research Institute for Children's and Women's Health
Vancouver, B.C.

Disclaimer: The Foundation respects each family's personal decisions. Information provided is for educational purposes only and should not be used for diagnosis, treatment or as a substitute for informed medical care.